American Cancer Society

For nearly 100 years, the American Cancer Society (ACS) has worked relentlessly to save lives and create a world with less cancer and more birthdays. Together with millions of our supporters worldwide, we’re helping people stay well, helping people get well, finding cures, and fighting back against cancer.

Cancer Hope Network

Cancer Hope Network is a non-profit organization that provides free and confidential one-on-one support to cancer patients and their families. As our core offering, we match cancer patients or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.

Cancer Resource Foundation

The Cancer Resource Foundation is a national nonprofit organization that advocates and provides support for the prevention, early detection, diagnosis, treatment, and survivorship of cancer through patient assistance, education and research.

Cancer Support Community

The mission of the Cancer Support Community is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Chris for Life

The Chris4Life Colon Cancer Foundation is a national Colon Cancer non profit dedicated to permanently eliminating the threat of the disease through the discovery of a cure. As long as people are dying from this disease, we will be at the front lines of the fight. To this end, we will fund cutting edge research so that the brightest minds and best institutions are empowered to cure colon cancer for good. Until then, Chris4Life Colon Cancer Foundation is committed to significantly improving the treatment experience for patients and caregivers, and to dramatically raise awareness about colon cancer in general. Chris4Life will utilize health and wellness as a means of integrating the mind, body and spirit in our approach. Working together we will build a culture of care and foster relationships with national colon cancer research institutions, non profit advocacy groups, the health care community, and the general public. Chris4Life four core values are Compassion, Empowerment, Perseverance, and Life.

ClinicalTrials.gov

ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

Colon Cancer Alliance

The mission of the Colon Cancer Alliance is to knock colon cancer out of the top three cancer killers. We are doing this by championing prevention, funding cutting-edge research and providing the highest quality patient support services.

FAP Foundation

The Familial Adenomatous Polyposis Foundation is a nonprofit organization serving the hereditary colon cancer community by connecting patients and their loved ones to educational and social resources, providing financial assistance for screening, treatment, counseling, and family planning, and by promoting requisite research and health care initiatives. We are building this community holistically by acting as a conduit to physical and psychological care from a variety of traditional and modern health care practices.

Fight Colorectal Cancer

Fight Colorectal Cancer is the leading national colorectal cancer advocacy organization empowering survivors to raise their voices, training advocates around the country, and educating lawmakers and pushing them for better policies. We offer support for patients, family members and their caregivers, and we serve as a resource for colorectal cancer advocates, policymakers, medical professionals, and healthcare providers. Additionally, we do everything we can to increase and improve research—at all stages of development and for all stages of cancer.

Li-Fraumeni Syndrome Association

LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

Lynch Syndrome International

The primary mission of Lynch Syndrome International (LSI) is to serve our global communities by focusing on providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors.

National Cancer Institute

The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

National Comprehensive Cancer Network

Our mission, as an alliance of leading cancer centers devoted to patient care, research, and education, is to improve the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

Peutz-Jeghers Syndrome and Juvenile Polyposis Syndrome Online Support Group

PJS is a free online support group for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to PJS (Peutz-Jeghers Syndrome) and Juvenile Polyposis Syndrome (JPS) This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists co-sponsored by ACOR, (the Association of Cancer Online Resources), a highly respected 501 (c)(3) non-profit organization, incorporated in New York State, may be found at www.acor.org.

PolyPeople

We are a support group who aim to provide support and information to anyone whose lives are or have been affected by Familial Adenomatous Polyposis and Gardner’s Syndrome (FAP) plus Peutz Jegher’s Syndrome, Juvenile Polyposis and MYH (Mut Y Homolog) whether patient, family, friend or those with an interest in the Gene.

Prevent Cancer Foundation

In 1985, compelled by the memory of her late father, Edward P. Richardson, who had died of cancer one year earlier, Carolyn Aldigé embarked on a mission. She founded the Prevent Cancer Foundation, a 501(c)3 nonprofit, with the hope of sparing others from the pain and suffering caused by cancer. Aldigé believed firmly that an emphasis on prevention, not just treatment, could help decrease cancer deaths and incidence rates. Since then, through its research, education and outreach efforts, the Foundation has worked hard to spread the prevention message to the public, spurring ground-breaking research and new ways to reach captive audiences.

PTEN World

PTEN World is for people with Cowden Syndrome/BRRS and their families and medical providers. Members may support each other on their profiles and in the discussion forum. If you are interested in learning more about our support group, then we hope you’ll sign up!